Make the most of your
time with your doctor

Be prepared for questions a doctor might ask

  • When did your eyesight go blurry?
  • Which eye was affected first?
  • Did you experience any pain when your eyesight issues began?
  • Are you able to distinguish colours?
  • Do you experience any pain when you move your eyeballs?
  • Do you have familiarity with multiple sclerosis (MS)?
  • Do you smoke or drink alcohol often?
  • Are you having difficulty reading?
  • Are you able to drive?
  • Can you recognise faces?
  • Has anyone in your family experienced sudden vision loss?
  • Do you know of any ancestors with vision impairment or LHON?

Be prepared with questions you might
want to ask a doctor

  • What is LHON?
  • Will my condition get worse?
  • Can I ever regain my vision?
  • Who can I speak to for support?
  • Are there any organisations that support people with LHON?
  • Will I need assisted living for life?
  • Is there any additional information my family should be aware of?
Print these questions

Keeping track of your symptoms can come in handy while discussing your condition with a doctor

Download LHON symptom tracker
Frequently Asked Questions

  • Multiple sclerosis (MS): This is a condition that can affect the brain and spinal cord, causing a wide range of potential symptoms, including problems with vision, walking, sensation or balance.Footnote1

    1. Ghasemi N, et al. Cell J. 2017;19(1):1-10.

    2. Yu-Wai-Man P, et al. J Med Genet. 2002;39:162–69.

Disclaimer: The information on this website is intended only to provide knowledge of Leber’s hereditary optic neuropathy (LHON). This information should not be used in place of advice from a healthcare professional. Please contact your doctor for advice. This website has been produced by Chiesi Pharmaceuticals. The website has been developed in accordance with industry and legal standards to provide information for the general public about LHON. Chiesi Pharmaceuticals makes every reasonable effort to include accurate and current information. However, the information provided in this website is not exhaustive.