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Resources
By clicking on the links below you will be leaving the Chiesi sponsored website and entering a
third-party only website. Chiesi is not responsible for the content of external websites.
National Organization for Rare Disorders (NORD)
Symptom tracker
Questions to ask your doctor
Family Member Checklist
Specialist centres for genetic testing
Rare Mitochondrial Disorders Service
Further information and support for patients with LHON
LHON Society
A patient-led group that provides information and support for those affected by LHON.
Royal National Institute of Blind People (RNIB)
UK’s leading sight loss charity offering both practical and emotional support services for blind and partially sighted people.
The Lily Foundation
UK’s leading mitochondrial disease charity and the largest charitable funder of mitochondrial research in Europe. Their mission is to improve the lives of people affected by mitochondrial diseases, while working towards a future where mitochondrial diseases can be effectively treated or cured.
Disclaimer: The information on this website is intended only to provide knowledge of Leber’s hereditary optic neuropathy (LHON). This information should not be used in place of advice from a healthcare professional. Please contact your doctor for advice. This website has been produced by Chiesi Pharmaceuticals. The website has been developed in accordance with industry and legal standards to provide information for the general public about LHON. Chiesi Pharmaceuticals makes every reasonable effort to include accurate and current information. However, the information provided in this website is not exhaustive.